To: The United States Congress

US Congress: ME Patients Around the World Care About Funding Equality

US Congress: ME Patients Around the World Care About Funding Equality

Myalgic encephalomyelitis (often referred to as Chronic Fatigue Syndrome or ME/CFS) is a severe neurological disease that affects at least 1 million Americans and leaves half of its victims disabled and unable to work. Many patients are considered at a greater functional impairment than those with congestive heart failure, multiple sclerosis, and end-stage renal disease.

The disease’s annual impact to the US economy is an estimated $24 billion in health care costs, lost wages, and lost productivity. However, at present the U.S. government does not have a research plan in place to mitigate this profound cost to society.

Currently, the U.S. National Institutes of Health (NIH) funds only $5 million per year for research into this disease.

As the only moral response to more than thirty years of official and medical neglect of this illness, we demand that Congress increase NIH research funding to $250 million per year, a level proportionate to the disease’s severity, prevalence and impact.

We, the undersigned patients, doctors, scientists, parents, children, family, friends, caretakers and #MEAllies, demand full and immediate funding equality for ME/CFS.

Why is this important?

In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases.

With an estimated 17 million patients worldwide, the longstanding neglect of this disease is a global issue. The US has a leading role to play in the hunt for a cure. With this petition we say, the whole world is watching.

ARE YOU A US CITIZEN?

This is our global solidarity petition for non-US voters. If you are a US voter, search the map: http://my.meaction.net/efforts/tell-congress-to-support-funding-equality-for-me-cfs/near/new to find your local state petition.

SHARE YOUR STORY

We want to present our elected leaders with real stories from the lives of their constituents who have been affected by ME. When you sign, please consider leaving a comment, story, or testimonial under “reasons for signing.”

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Reasons for signing

  • my wife has sufferred from this condition for 30 years and doctors don't have a clue. only a few people are actively engaged in trying to understand.
  • We live with a Me/CFS person in our family. We exist with the lack of resources for this illness! Patients need help now!!!!
  • I have ME and we nées more research

Updates

2015-05-19 12:02:59 -0400

1,000 signatures reached

2015-05-15 14:52:32 -0400

500 signatures reached

2015-05-13 09:24:01 -0400

100 signatures reached

2015-05-13 07:38:46 -0400

50 signatures reached

2015-05-13 05:28:47 -0400

25 signatures reached

2015-05-12 17:30:07 -0400

10 signatures reached