To: Wisconsin's Senators and Representatives

Tell Congress to Support Funding Equality for ME: Wisconsin

Tell Congress to Support Funding Equality for ME: Wisconsin

Myalgic encephalomyelitis (often referred to as Chronic Fatigue Syndrome or ME/CFS) is a severe neurological disease that affects at least 1 million Americans and leaves half of its victims disabled and unable to work. Many patients are considered at a greater functional impairment than those with congestive heart failure, multiple sclerosis, and end-stage renal disease.

The disease’s annual impact to the US economy is an estimated $24 billion in health care costs, lost wages, and lost productivity. However, at present the U.S. government does not have a research plan in place to mitigate this profound cost to society.

Currently, the U.S. National Institutes of Health (NIH) funds only $5 million per year for research into this disease.

As the only moral response to more than thirty years of official and medical neglect of this illness, we demand that Congress increase NIH research funding to $250 million per year, a level proportionate to the disease’s severity, prevalence and impact.

We, the undersigned patients, doctors, scientists, parents, children, family, friends, caretakers and #MEAllies, demand full and immediate funding equality for ME.

Why is this important?

In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases.

SHARE YOUR STORY

We want to present our elected leaders with real stories from the lives of their constituents who have been affected by ME. When you sign, please consider leaving a comment, story, or testimonial under �reasons for signing.�

NOT A VOTER IN THIS STATE?

Search the map to find your local petition: http://my.meaction.net/efforts/tell-congress-to-support-funding-equality-for-me-cfs/near/new

If you are not a US voter, you can sign the global solidarity petition: http://my.meaction.net/petitions/us-congress-me-patients-around-the-world-care-about-funding-equality

Wisconsin, United States

Reasons for signing

  • I range from being home bound except for necessary appointments to being bed bound (right now). I want to be able to do more for and with family and friends.
  • I have been on Soc Sec Disability since the early 1990's. What I really wanted all those years ago was a full, healthy life and a career. I don't want these things to be taken away from yet another generation of people by ME CFS.

Updates

2015-06-07 21:22:35 -0400

25 signatures reached

2015-06-01 23:13:49 -0400

10 signatures reached