UNREST screening in support of #MillionsMissing Visibility Action: Wellington, New Zealand
Rose Silvester and Sam Featherstone have co-founded NZcare4ME, a network for carers of young people with ME/CFS and other similar chronic illnesses (such as POTS, EDS, MCAD and Fibromyalgia). The aim of the network is to start regional support groups and, working alongside each other, increase information and knowledge about ME/CFS, leveraging this increase in information and knowledge to positively influence service delivery in New Zealand primary care.
We are keen to ensure that local clinicians and educators have credible and relevant information at their fingertips. We also want to connect those working in the area with the goal of sharing information and experience, and promoting the further development of expertise. We want to make the journey easier for other families and minimize the isolation and confusion that they often feel when seeking help.
Our inaugural event is a screening of Unrest which has been approved as an ME/CFS Education Event and has been endorsed by The Royal New Zealand College of General Practitioners. We have had an overwhelming response—the 70 seat cinema is fully booked! Attendance is confirmed from GPs, specialists, educators, pwME, carers and allies. We’re looking forward to the discussion afterwards and will share updates.
More information on our fb page including how to join the online group. www.facebook.com/NZcare4ME/