#MillionsMissing Call for Action: Palm Cove, Australia
#MillionsMissing is a global campaign for ME health equality. Help us take action on May 11th, 2019 by joining our Call for Action in Palm Cove, Cairns, Australia.
ME stands for Myalgic Encephalomyelitis. The WHO classified it as a neurological condition in 1969.
It is a " complex, acquired multi-systemic disease....causing ...Profound dysfunction/dysregulation of the neurological control system, resulting in faulty communication and interaction between the CNS and major body systems, " (Myalgic Encephalomyelitis - Adult & Paediatric: International Consensus Primer for Medical Practitioners, 2012, pg 1).
You are invited to attend a screening of UNREST, a recent documentary about the condition, which has received world wide praise during last year’s international film festivals around the world. There will also be a short talk from people who have been effected by this chronic illness. Local politicians, health professionals, and local community members have been invited to attend. This is a free event and food and drinks will be available.
Photographs and short film clips will be collected during the event. These will then be collated into a small package to use as online promotions in Australia, and across the globe.
You will be given an opportunity to join our call for action, by distributing this package amongst your social media networks the following day, Sunday 12th May, and by asking your contacts to also share within their networks. May 12th is The culminating day for global action for ME.
The focus for us here in Australia is to create visibility, awareness and recognition for ME. We need the government to significantly increase funding for research, and change policy so those effected can access financial and physical support through pensions and NDIS schemes that currently exclude sufferers. We also need GPS and specialists to receive the most recent scientific evidence and recommendations in relation to diagnosis and ongoing management from the ME specialist community of the world. These recommendations are at direct conflict to current AU suggested guidelines that the government and some medical professionals base their treatments on. These inaccurate views stem from an old research paper, which has recently been denounced by the scientific community as severely flawed, and significantly detrimental to the health of ME patients.
The ME community are missing from their lives, missing from their families and communities. They can lose their friends, their family, their jobs, their houses and all financial security and independence. Jobless, friendless, homeless, lifeless.
Please come and join me to show support for this community, and join the call to action. The larger and wider we can spread the word, the more impact we can have on increasing funding and improving diagnosis and ongoing management and support for these people.
Why? Because their lives depend on it.
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