#MEAction Draft RFI Response to NIH - Community Q&A Discussion
Please join us for a community Q&A discussion of #MEAction's draft response to the recent NIH Request For Information (RFI) on Friday, April 26 at 5pm ET / 2pm PT.
REGISTRATION IS REQUIRED TO ATTEND. We will send you the call-in information by email in order to join this meeting.
NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI from the ME community here: https://www.ninds.nih.gov/RFI-NANDS-ME-CFS
You can view #MEAction's draft RFI response here:
#MEAction will continue to work on this document and will submit a final response by the NIH's Wednesday, May 1st deadline. Anyone in the community can also submit their own RFI response directly to the NIH.
#MEAction has prepared a draft response to the NIH Request For Information (https://www.ninds.nih.gov/RFI-NANDS-ME-CFS). The deadline for RFI response is Wednesday, May 1st.
#MEAction will publish our draft response, as it currently stands, on Wednesday April, 24th here:
3 Things You can Do:
1) Attend this call and share with us your feedback and/or questions. Can't make the call? You can email us at firstname.lastname@example.org. Due to the tight deadline we regret we will not able to respond individually to your messages, but we will read them.
2) Provide us your suggestions for answering questions 8 and 9 of the RFI. You can submit suggested answers to these two questions through this form: https://forms.gle/3TvK4cTMw89FSFxE8
3) We also encourage you to submit your own RFI response to cover any gaps you may note in our
drafted response. (https://www.ninds.nih.gov/RFI-NANDS-ME-CFS)