#MEAction Draft RFI Response to NIH - Community Q&A Discussion

Please join us for a community Q&A discussion of #MEAction's draft response to the recent NIH Request For Information (RFI) on Friday, April 26 at 5pm ET / 2pm PT.

REGISTRATION IS REQUIRED TO ATTEND. We will send you the call-in information by email in order to join this meeting.

NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI from the ME community here: https://www.ninds.nih.gov/RFI-NANDS-ME-CFS

You can view #MEAction's draft RFI response here:

#MEAction will continue to work on this document and will submit a final response by the NIH's Wednesday, May 1st deadline. Anyone in the community can also submit their own RFI response directly to the NIH.

#MEAction has prepared a draft response to the NIH Request For Information (https://www.ninds.nih.gov/RFI-NANDS-ME-CFS). The deadline for RFI response is Wednesday, May 1st.

#MEAction will publish our draft response, as it currently stands, on Wednesday April, 24th here:
(insert link)

3 Things You can Do:
1) Attend this call and share with us your feedback and/or questions. Can't make the call? You can email us at info@meaction.net. Due to the tight deadline we regret we will not able to respond individually to your messages, but we will read them.
2) Provide us your suggestions for answering questions 8 and 9 of the RFI. You can submit suggested answers to these two questions through this form: https://forms.gle/3TvK4cTMw89FSFxE8
3) We also encourage you to submit your own RFI response to cover any gaps you may note in our
drafted response. (https://www.ninds.nih.gov/RFI-NANDS-ME-CFS)

Read more here:

Hosted by
Benjamin HsuBorger
Starts on
Friday, 26 April 2019 at 5:00 PM EDT
Ends on
Tuesday, 30 April 2019 at 6:00 PM EDT