• Tell Congress to Support Funding Equality for ME: California
    In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases. SHARE YOUR STORY We want to present our elected leaders with real stories from the lives of their constituents who have been affected by ME. When you sign, please consider leaving a comment, story, or testimonial under �reasons for signing.� NOT A VOTER IN THIS STATE? Search the map to find your local petition: http://my.meaction.net/efforts/tell-congress-to-support-funding-equality-for-me-cfs/near/new If you are not a US voter, you can sign the global solidarity petition: http://my.meaction.net/petitions/us-congress-me-patients-around-the-world-care-about-funding-equality
    435 of 500 Signatures
    Created by ME Action Picture
  • Tell Congress to Support Funding Equality for ME: Arizona
    In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases. SHARE YOUR STORY We want to present our elected leaders with real stories from the lives of their constituents who have been affected by ME. When you sign, please consider leaving a comment, story, or testimonial under �reasons for signing.� NOT A VOTER IN THIS STATE? Search the map to find your local petition: http://my.meaction.net/efforts/tell-congress-to-support-funding-equality-for-me-cfs/near/new If you are not a US voter, you can sign the global solidarity petition: http://my.meaction.net/petitions/us-congress-me-patients-around-the-world-care-about-funding-equality
    62 of 100 Signatures
    Created by ME Action Picture
  • Tell Congress to Support Funding Equality for ME: Alaska
    In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases. SHARE YOUR STORY We want to present our elected leaders with real stories from the lives of their constituents who have been affected by ME. When you sign, please consider leaving a comment, story, or testimonial under �reasons for signing.� NOT A VOTER IN THIS STATE? Search the map to find your local petition: http://my.meaction.net/efforts/tell-congress-to-support-funding-equality-for-me-cfs/near/new If you are not a US voter, you can sign the global solidarity petition: http://my.meaction.net/petitions/us-congress-me-patients-around-the-world-care-about-funding-equality
    6 of 100 Signatures
    Created by ME Action Picture
  • Tell Congress to Support Funding Equality for ME: Alabama
    In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases. SHARE YOUR STORY We want to present our elected leaders with real stories from the lives of their constituents who have been affected by ME. When you sign, please consider leaving a comment, story, or testimonial under �reasons for signing.� NOT A VOTER IN THIS STATE? Search the map to find your local petition: http://my.meaction.net/efforts/tell-congress-to-support-funding-equality-for-me-cfs/near/new If you are not a US voter, you can sign the global solidarity petition: http://my.meaction.net/petitions/us-congress-me-patients-around-the-world-care-about-funding-equality
    17 of 100 Signatures
    Created by ME Action Picture
  • Tell Congress to Support Funding Equality for ME/CFS: Hawaii's Senators and Representatives
    In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases.
    7 of 100 Signatures
    Created by ME Action Picture
  • A Spanish petition that needs support from #pwME
    " On January 18, 2019, an " Update Guide in the Evaluation of Fibromyalgia, Chronic Fatigue Syndrome, Multiple Chemical Sensitivity, Electrosensitivity and Somatoform Disorders was published on the Social Security website . 2nd Edition ". It contains a definition of each pathology, form of diagnosis, evolution and treatment, as well as indications about the periods of disability, temporary and permanent, and the evaluation of it. For this reason, it will not only reach the evaluators and inspectors of the National Institute of Social Security (Ministry of Labor), it will also be distributed to all primary care doctors in the national territory, with the aim of determining temporary work disabilities. It is important to note that such a wide distribution of the Guide, and given that there is no official document that organically defines and specifies each pathology by either the Ministry of Health or the Health Departments of the different Autonomous Communities, it gives it an importance and fundamental importance for patients. In this DOCUMENT we gather the outdated or absent aspects of rigor of this guide. We summarize the most important points: 1. The inclusion of Somatoform Disorder among the diseases that are really the object of the Guide has no medical or scientific justification. This disorder acts in fact as a filter, veiled or explicitly denying the reality of these diseases as organic pathologies and their own entities, ignoring current scientific evidence. 2. For the preparation and revision of this Guide, the medical specialists who study and / or treat them have not been taken into account. 3. Codes attributed to other conditions have been used, which in some cases do not coincide with the diagnostic criteria included in the guide. 4. Some of the approaches and treatment recommendations included in the guide pose a risk to the health and integrity of patients. 5. Useful tests for the evaluation of diseases are rejected or ignored. 6. In general, its content does not reflect the evidences, scientific updates or clinical advances related to these diseases. In short, it is a guide that worsens the social and work situation of thousands of patients, violating their fundamental rights in health and healthcare, as well as access to benefits and social services. In addition, its application can cause serious damage to health. PATIENT ASSOCIATIONS WE ASK FOR THE WITHDRAWAL OF THIS GUIDE, as well as its non-distribution, REVISION AND RE-PAIL in the light of updated data that have not been taken into account and with expert advisors . This direct petition has been dismissed by the INSS. That is why today we turn to the citizens to request support for our petition. WE ARE SEEKING TO IMPROVE THE CONDITIONS OF HEALTH AND SOCIAL CARE TO THESE PATHOLOGIES. SUPPORT US, SIGN THIS APPLICATION AND DISSEMINATE." * Original text written by CONFESQ ( National Coalition of Fibromyalgia Entities, SFC, SQM and EHS) in the signature petition change.org: https://www.change.org/p/instituto-nacional-de-la-seguridad-social-ministerio-de-trabajo-retiren-la-gu%C3%ADa-del-inss-para-fibromialgia-sfcem-sqm-y-ehs-1bdf1ba3-f125-4612-afd6-8d959f25656a
    2 of 100 Signatures
    Created by Marta Prieto
1 2 3 4 6 Next →